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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list!

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Pre-K

See below for IEPs submitted for the Pre-School year.  This is usually the first experience with IEPs.  It can be overwhelming to sit down with so many people and try to figure out what they should be doing with your daughter all day.  Please reach out to us if you need support.
To submit your IEP to our “bank” click here!
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Child Description: Ambulatory
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Child Description: Non-Ambulatory, starting to have seizures, non-stop hand mouthing, lots of breath holding, alert
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Child Description:non-ambulatory; uses KidKart for transportation,eats by mouth – pureed food, must be feed, thickened liquids; (no tube at this time)
can reach with arms, but grasp is weak (limited hand function),non-verbal, but uses PODD book for communication,excellent eye-gaze,Seizures
Reflux,not placed in the most restrictive school
Placed in Special Education classroom with students who have Autism, Down Syndrome, etc