RESEARCH
Rett Syndrome Reseach Trust
Website: www.reverserett.org
Blog: www.rettsyndrome.wordpress.com
Newsletter: RTT Watch
Twitter: www.twitter.com/rsrt
OTHER RETT ORGANIZATIONS:
International Rett Syndrome Foundation
Israel Rett Syndrome Center
Mikyla-Cure
Rett Syndrome Association (UK)
Rett Syndrome Community Foundation (North Carolina)
Rett Syndrome Research Assistance (Ukraine)
Stitching Rett Syndroom (Netherlands)
PAPERS ON RETT SYNDROME FROM SPECIALISTS:
Videofluororadiographic Descriptors of Swallowing Physiology in Typical Rett Syndrome: Post-Regression Stabilization During Early Childhood Suzanne S. Abraham
Multi-Modal Communication Strategies for
Children Who have Rett Syndrome
Linda J. Burkhart
Optimizing Nutrition for Girls Affected with Rett Syndrome
Sara-Jane White, Doctor of Naturopathic Medicine
ABOUT “GIRLS WITH RETT SYNDROME”
LETTER FROM RJ COOPER – Pioneer in Assistive Technology
www.rjcooper.com
Back to School Tips From Parents:
Back To School Strategies for
Children Who have Rett Syndrome
GirlPower2cure
How to Adapt with PVC
PVC Assistive Tech
CLICK HERE FOR LIST OF HELPFUL WEBSITES
REGIONAL
FLORIDA
ILRC OF NORTHEAST FLORIDA
WEBSITE
NORTHEAST
The School for Children with Hidden Intelligence
WEBSITE




