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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Resources

RESEARCH

Rett Syndrome Reseach Trust
Website: www.reverserett.org
Blog: www.rettsyndrome.wordpress.com
Newsletter: RTT Watch
Twitter: www.twitter.com/rsrt

OTHER RETT ORGANIZATIONS:

International Rett Syndrome Foundation
Israel Rett Syndrome Center
Mikyla-Cure

Rett Syndrome Association (UK)
Rett Syndrome Community Foundation (North Carolina)
Rett Syndrome Research Assistance (Ukraine)

Stitching Rett Syndroom (Netherlands)

PAPERS ON RETT SYNDROME FROM SPECIALISTS:

 

Videofluororadiographic Descriptors of Swallowing Physiology in Typical Rett Syndrome: Post-Regression Stabilization During Early Childhood                                                                                          Suzanne S. Abraham

Multi-Modal Communication Strategies for
Children Who have Rett Syndrome

Linda J. Burkhart

Optimizing Nutrition for Girls Affected with Rett Syndrome
Sara-Jane White, Doctor of Naturopathic Medicine

ABOUT “GIRLS WITH RETT SYNDROME”
LETTER FROM RJ COOPER  – Pioneer in Assistive Technology
www.rjcooper.com

Back to School Tips From Parents:

Back To School Strategies for
Children Who have Rett Syndrome

GirlPower2cure

How to Adapt with PVC
PVC Assistive Tech

CLICK HERE FOR LIST OF HELPFUL WEBSITES

REGIONAL

FLORIDA
ILRC OF NORTHEAST FLORIDA
WEBSITE
NORTHEAST
The School for Children with Hidden Intelligence
WEBSITE