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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list!

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Eye Gaze Information

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We are hearing tremendous stories from many of you about your eye gaze devices,  journeys and hardships in getting them for your girls.

We have put together this page as a resource to help you find out what is out there and how to get it!
[An “eye gaze” device is a type of computer screen that uses infrared technology to “read” where the user’s eyes are looking — the user can then use their eyes to control the mouse pointer and access software that “speaks” the words the user looks at.]

Where Do I Start?

Included on this page:

  • two Medical Necessity Letter examples
  • helpful resources
  • links to eye gaze systems
  • links to mounting your system

TIP!  When speaking with insurance companies, use the term “SPEECH GENERATING DEVICE” and “MEDICAL NECESSITY”.

VIDEO RESOURCE:  Eyegaze for Education – Women and Girls with Rett Syndrome [presented by Kate Ahern, MS Ed.]

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Successful Medical Necessity Letters

Here are two successful letters from Doctors that were used to obtain devices. You are free to use these to your advantage. Send them to your caseworkers, doctors, and therapists to assist them in what is needed to write a successful letter.

Eye Gaze Letter 1

Eye Gaze Letter 2

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Helpful Links

Rett University – Check out this new e-learning site! There are several webinars that demonstrate eye gaze as part of learning to read and building on reading skills.

The Center for ACC & Autism: LAMP – Language Acquisition through Motor Planning (LAMP) is a therapeutic approach based on neurological and motor learning principles. The goal is to give individuals who are nonverbal or have limited verbal abilities a method of independently and spontaneously expressing themselves in any setting.

We believe that our girls could really benefit from making sure their boards, etc were setup with their struggles with apraxia as a priority.

IRSF Communication and Device Information Exchange – This is a Facebook page where parents, teachers, therapists, ANYONE working with your child’s communication can share ideas, ask questions, or simply post pictures/stories of communication! Kate Ahern MS Ed. (assistive technology specialist) is an amazing resource and is a moderator of this group.
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DEVICES:

TobiiDynavox

from company website:   The I-Series+ consists of the Tobii Dynavox I-12+ and I-15+, two speech generating devices that can be controlled through gaze interaction via an optional built-in eye tracker. The I-Series+ is optimized for individuals with Cerebral Palsy, Rett, ALS or Stroke/Aphasia, who rely on augmentative and alternative communication to make their voices heard, in order to live more independent and integrated lives.

The eye tracker doesn’t need the user to “do” or “wear” anything. Simply sit in front of it, follow a dot during a 10-second calibration and you are on your way! With flexible mounting, easy customization and different hardware options, every situation is catered to.

  • Reliable tracking
  • No undue restraint on head movements
  • Tracks nearly everyone, even those with glasses or contacts
  • Works in most lighting conditions
  • Compensates for large head movements without errors
  • Very high accuracy

Mobile solutions: EyeMobile, PCEye Go and PCEye Explore (entry level device)


PRC Accent™ 1400 with NuEye Tracking System

from company website:  Accent™ 1400 is a speech-generating device (SGD) that offers user-friendly features to make communicating fast and easy for individuals with speech impairments. The large 14” screen is the perfect choice for individuals with complex access needs or those who want larger icons.

The Accent 1400 offers a choice of vocabulary options featuring Unity® with LAMP/Words for Life™, CoreScanner™, and WordCore. Other available vocabulary options include Essence™ for literate adults and WordPower™. The Accent 1400 is powered by PRC’s NuVoice software and offers built in support resources for clinicians and clients. The Accent 1400 also offers multiple access options and accommodates the NuEye™ Tracking System and the NuPoint Headtracking System (Available Summer 2015).


LC Technologies Eyegaze Edge

from company website: With the Eyegaze Edge™ people with physical disabilities can do many things with their eyes that they would otherwise do with their hands. Simply by looking at control keys displayed on a computer monitor screen, the user can perform a broad variety of functions including speech synthesis, environmental control, sending emails, browsing the Internet, playing games, typing, and controlling most PC and MAC computers.

Eyetracking systems can enhance the quality of life of a disabled person, his family and his community by broadening his communication, entertainment, learning and productive capacities.

The Eyegaze Edge™ is an FDA- approved communication and control system for people with complex physical disabilities. The system is operated entirely with the eyes. By looking at control keys displayed on a screen, a person can synthesize speech, control his environment (lights, call bells, etc.), type, run computer software, operate a computer mouse, and access the Internet and e-mail. Eyegaze Edge™ Systems are being used to write books, attend school and enhance the quality of life of people with disabilities all over the world.

Mounts: