Rett Girl

“Imagine” Necklace

admin — Fri, 03 Sep 2010 14:32:36 +0000

Submitted by: Kelly Butler

Lisa Leonard is so talented and has made necklaces for Josie Bissett and Jennie Garth. Her latest creation was made for Rett Syndrome, for our girls, for OUR cure! It is called “IMAGINE,” it is $40.00 and shipping is $7.00……I can Imagine our future WITHOUT Rett Syndrome can you?!? All proceeds will be donated to Girl Power 2 Cure Contact me to order yours today!! ($42.00 for Canada)

Tinkyada Pasta

terri-gp2c — Fri, 27 Aug 2010 14:15:36 +0000


We received this Pasta from a Chef and mother to a girl on a gluten free diet. She now orders this pasta online or buys from the Whole Foods Store. Her whole family has switched to this pasta and report that they love it!

Signing Time

terri-gp2c — Tue, 24 Aug 2010 14:36:48 +0000

These videos are so much fun. Sign was not something we had really considered once our daughter lost her hand function until she was placed in a class with a hearing repaired teacher. She responded so well when she was signed to as well as spoken to.

This line of videos is by the same woman that does the signing songs on Nickelodeon and Nick Jr. She really makes it fun.

Mini Massager

terri-gp2c — Tue, 24 Aug 2010 14:18:19 +0000

Our PT first introduced us to this Mini Massager in therapy. It is wonderful for relaxing those tight muscles in the back and shoulders without over stimulating your girl. We use it on her hands and feet when circulation is poor and the tootsies are getting cold.

Also available at Walmart and Walgreens

Pathways To Learning In Rett Syndrome

terri-gp2c — Tue, 24 Aug 2010 14:16:48 +0000

We bought this book when our Abby first entered pre-school. I spent 2 days highlighting things that hit home and things that affected our girl. The school was so impressed they bought copies for each department.

Offering accessible advice on the special educational needs of girls with Rett syndrome, this volume aims to assist teachers in developing a working knowledge of the syndrome and suggests particular strategies in planning a curriculum which may help overcome the specific difficulties within the diagnosis. For parents, the book provides a picture of the special school system in this country and the educational implications for their daughters. It should also be of interest to those working with pupils with a more general type of profound learning disability.

Understanding Rett Syndrome

terri-gp2c — Tue, 24 Aug 2010 14:15:32 +0000

We bought this book and sent it around to those we were unable to explain Rett Syndrome to when we were still in the 1st stages of discovery.

The brand new edition of this unique book describes the difficulties and challenges of girls and women with Rett Syndrome, and proposes solutions that can help them in everyday life. Written from an educational perspective, and based on extensive practical, real-life experience, it also takes into consideration living conditions as a whole to provide practical and effective help for all those involved in the care of those with Rett Syndrome. Rett Syndrome is a severe neurological disorder with no cure affecting 1 out of every 10,000-15,000 female births worldwide. It is now known to result from a chromosomal defect that leads to problems such as cognitive impairement, serious motor handicaps, epileptic seizures, and difficulties with communication. This syndrome is found only in girls, and usually becomes noticeable during their second year of life. In this new edition, the chapters on intelligence and understanding, learning and communication have been elucidated and deepened. There are also some new sections on digital pictures, computers, and sensory environments. “Understanding Rett Syndrome” is primarily intended for people close to those with Rett syndrome, including teachers, therapists and parents, but should be valuable to anyone involved with children with mental and functional disorders

Leckey Advance Bath Seat

terri-gp2c — Tue, 24 Aug 2010 14:07:36 +0000


We ordered this chair from adaptivemall.com after my back couldn’t take all the bending and lifting in our tiny bathroom. It has been a real backsaver. She can sit up,be tilted or lay flat and it is plenty sturdy at a fraction of the cost of other models on the market today. Comes in 4 sizes.

e-Special Needs Software

terri-gp2c — Tue, 24 Aug 2010 14:06:17 +0000


We have found a wonderful sight that has loads of software for almost every need. eSpecial Needs offers a variety of computer software programs designed using learning programs for students with disabilities. From programs that assist with language and vocabulary to ones that focus on core concepts such as numbers, colors, shapes, sizes, opposites, and matching; improving auditory attending and comprehension skills is a main goal of many of the programs.Cause and effect. Sights and sounds and so much more!

Special Tomato EIO Push Chair

terri-gp2c — Tue, 24 Aug 2010 14:05:04 +0000

The Special Tomato® EIO Push Chair is the best of both worlds…a special needs stroller that provides mild to moderate positioning support AND a light-weight stroller that provides all of the bells and whistles that make it easier for the caregiver on the go!

We take this with us everywhere. Super light weight and very comfortable. We can have her straight up or completely flat for changing or feeding! Very durable. We have taken it to the beach,baseball games. A great all around stroller.

Wrist and Ankle Weights

terri-gp2c — Tue, 24 Aug 2010 14:03:37 +0000


Weights worn on the wrist or ankle can substantially increase muscle tone. These weights are comfortable enough to wear during everyday activities and allow benefits throughout the day. Some clients have also had success in reducing hand flapping through the use of wrist weights. We ordered these weights shortly after ordering a weighted blanket from the same company. They are hands down the best we have used and cost much less than many on the adaptive equiptment sites.