Click here to submit a doctor you want to refer who has worked with a Rett patient.
Alaska
Arizona
Dr. Robert P. Erickson (Neurology)
University of Arizona
Tucson AZ
520-324-3200
Dr. Dinesh Talwar (Pediatric Neurology)
Pediatric Neurology Associates
2450 E River Rd
Tucson AZ 85718
520-326-2661
Dr. John Gray (Pediatric Neurology)
Pediatric Neurology Associates
Tucson AZ 85718
520-326-2661
Dr. Jude Trautlein (Nutritionist)
2509 N Campbell Ave #122
Tucson AZ 85719
520-324-3515
Dr. Brian Nielsen (Orthopaedist)
Tucson Orthopaedic Institute
520-784-6200
Dr. Mohammed Nomaan (Pediatrician)
Children’s Medical Center
5861 N Oracle Rd
Tucson AZ 85704
520-293-6686
Dr. Linda Riordan (Pulmonologist)
3140 N Swan Rd
Tucson AZ 85712
520-885-0185
Dr. Theresa A.Grebe (Geneticist)
Phoenix Children’s Hospital
1919 East Thomas Rd.
Phoenix, AZ 85016
P: 602-933-4363
F: 602-933-4179
tgrebe@phoenixchildrens.com
Childrens Hospital Orange County
Childrens Neuroscience Institute
455 S Main St
Orange CA 92868
1-800-329-2900
Kathryn Smith, RN, MN
Rett Clinic
USC University Center of Excellence in Developmental Disabilities
Children’s Hospital Los Angeles
4650 Sunset Blvd., MS#53
Los Angeles, CA 90027
Contact Kathy Smith: 323-361-8301
For appointments call: 323-361-3849
Dr. Mary Jones
Director, Katie’s Clinic for Rett Syndrome
Developmental and Behavioral Pediatrics
Children’s Hospital and Research Center in Oakland (CA)
5220 Claremont Ave
Oakland, CA 94618
Contact: Pat George, Clinic Coordinator510-428-3885 Ext 2302
Dr. Maryann Finnerman
Pediatrician
Pediatric Associates Medical Group
4330 Fulton Avenue
Sherman Oaks, CA 91423
818-784-1102
Dr. William Goldie*
Pediatric Neurologist
3160 Loma Vista Road
Ventura CA 93003
805-641-4490
Dr. David Ferry
Pediatric Cardiologist
5400 Balboa Blvd, Suite 202
Encino, CA 91316
818-784-6269
Dr. John Graham*
Pediatric Geneticist
Cedars-Sinai Medical Center
8635 W. Third St., Suite 1070
Los Angeles, CA 90048
310-423-9914
Dr. Larry Eisenberg
Pediatric Gastroenterologist
18372 Clark St # 216
Tarzana, CA 91356
818-705-8559
Dr. Michelle To
Pediatric Dentist
13320 Riverside Drive
Suite 202
Sherman Oaks, CA 91423
818-789-3844
Dr. Phillip Wolkstein (Dentistry)
841 Blossom Hill Rd
San Jose CA 95123
408-578-6550
Dr. Billur Moghaddam (Genetics)
UC Davis Health System
2825 50th Street
Sacramento CA 95817
916-703-0413
Dr. Uta Francke (Genetics)
Stanford University Medical Center
650-736-7642
Dr. Joyce Kabori (Genetics)
5775 Cottle Road Bldg 1
Santa Teresa Kaiser
San Jose Ca 95123
408-972-3300
Dr. Shailesh Asaikar (Neurology)
1111 Exposition Blvd
Sacramento CA 95815
916-733-8150
916-649-9800
Dr. Sarah Spense (Psychiatry)
Mattel Children’s Hospital at UCLA
300 Medical Plaza
Los Angeles CA 90095
Dr. Richard Haas (Neurology)
8010 Frost
UCSD
San Diego CA 92123
Dr. Doris Trauner (Neurology)
Children’s Specialists
UCSD
858-534-5999
Dr. Dwarka Sankar (Neurology)
Santa Clara Kaiser
710 Lawrence Expressway
408-236-6492
Dr. Mark Jacobson (Opthamology)
104 Lynch Creek Way
Petaluma CA 94954
707-762-3573
Dr. Creig Hoyt (Opthamology)
UCSF
415-353-2289
Dr. Stephen Austin Lee (Dentistry)
12845 Poway Rd
Poway CA 92064
858-748-3384
Dr. Peter Newton (Orthopaedist)
Pediatric Orthopaedic and Scoliosis Center
3030 Children’s Way
San Diego CA 92123
858-966-6789
Dr. Renee Wachtel (Pediatrician)
Children’s Hospital and Research Center
747 52nd Street
Oakland CA 94609
510-428-3351
Dr. Bruce Block (Pediatrician)
4145 Clares Street
Capitola CA 95010
831-476-1933
Lisa deFaria (LCSW)
1900 Garden Rd
Monterey CA 93940
831-333-9251
Dr. Sung Min Park (Pulmonology)
Children’s Hospital San Diego
3020 Children’s Way
San Diego Ca 92123
858-966-5846
*please note Dr. Goldie is absolutely amazing and has quite a few Rett girls and women as patients. Dr. Percy knows him and recommended we see him over another Dr we were interviewing.
Colorado
Hawaii
Idaho
Dr. Henry Thompson (Gastroenterology)
100 E Idaho Street
Boise ID 93712
208-381-7310
Dr. David Bettis (Neurology)
100 E Idaho Street
Boise ID 93712
208-344-2525
Dr. Kevin Shea (Orthopaedics)
Intermountain Orthopaedics
1109 W Myrtle Street
Boise ID 83702
208-381-7310
208-383-0210
Dr. Tom Cormwall (Pediatrics)
Primary Health Pediatrics
6348 W Emerald Street
Boise ID 83704
208-377-4400
Dr. Angela Beauchaine (Pediatrics)
Primary Health Pediatrics
6348 W Emerald Street
Boise ID 83704
208-377-4400
Nevada
New Mexico
Montana
Oregon
Dr. Sarojini Budden MD, FRCPC
Director Rett Syndrome Clinic
The Children’s Hospital at Legacy Emanuel
2801 N Gantenbein, Suite 2225
Portland, OR 97227
Phone: 503-413-4505
Fax: 503-413-4719
Dr Mario Petersen
Director Rett Syndrome Clinic
Child Development and Rehabilitation Center
Oregon Health and Sciences University
P.O. Box 574
Portland, OR 97207
Contact: Alexis Lewis 1-503-494-0325
Doernbecher Children’s Hospital
3181 Sw Sam Jackson Park Rd
Portland, OR 97239
503-494-8811
Shriners Hospitals For Children
503-241-5090
Address: 3101 SW Sam Jackson Park Rd
Portland, OR 97239
Dr. Mario Petersen
901 E 18th Ave
Child Development Rehabilitation
Suite 105
Eugene OR 97403
Utah
Washington
Dr. Russell Saneto (Neurology)
Seattle Childrens Hospital
4800 Sand Point Way NE
Seattle WA 98105
206-987-2380 866-987-2000
Website
Dr. Charles Brown (Pediatrician)
Seattle Childrens Hospital
4800 Sand Point Way NE
Seattle WA 98105
206-987-2380
Dr. Kit M. Song (Orthapaedist)
Seattle Childrens Hospital
4800 Sand Point Way NE
Seattle WA 98105
206-987-2380, 866-987-2000
Dr. Stephen Glass (Neurology)
17924 140th Ave NE
Woodinville WA 98072
425-424-9200
Dr. John D. Morgan (Neurology)
Swedish Epilepsy Center
Multiple Locations
Seattle WA
Wyoming
