Click here to submit a doctor you want to refer who has worked with a Rett patient.
Connecticut
Dr Lawrence Dinkes ( Pediatric Dentistry)
4702 Main Street
Bridgeport CT 06606
203-371-8282
Dr Mark Glassman (Gastroenterology)
Childrens and Womens Physical
149 East Avenue Suite 39
Norwalk CT 06851
203- 853-7170
Dr Francis DiMario (Neurology)
Connecticut Children’s Medical NEU
282 Washington Street Suite 2A
Hartford CT 06106
860- 545-9460
Dr Edward Novotny
800 Howard Avenue
New Haven CT 06519
203- 785-2140
203-785-5730
Dr Robert Chessin (Pediatrics)
Pediatric Healthcare Associates
4699 Main Street Suite 215
Bridgeport CT 06606
203- 452-8322
Dr Karalyn Kinsella
Pediatric Associates Cheshire
420 South Main Street Suite 3
Cheshire CT 06410
203- 272-0396
Delaware
Dr. Carolyn Schanen
Director, Center for Applied Clinical Genomics
Nemours Alfred I duPont Hospital for Children
1600 Rockland Road
Wilmington DE 19803
302-651-6804
Contact: Kathy Sewell
District of Columbia
Dr Stephen Mott (Neurology)
Georgetown University Hospital
3800 Reservoir Road North West
Washington DC 20007
202- 444-8785
Dr Phillip Pearl (Neurology)
111 Michigan Avenue North West Suite 800
Washington DC 20010
202- 476-6230
Maine
Dr. Michael Lambke
Skowhegan Family Medicine
64 Fairview Av.
Skowhegan Maine 04976
(207) 474-6201
note from Cindy-Rae Vinson: This doctor got us to the right Neurologlist which got us a correct dianosis. Upon learning my daughter had Rett syndrome, Dr. Lambke offered to do some research and find us a doctor who knew more about Rett syndrome if we wanted but he was willing tolearn and take this journey with us! He’s been wonderful with my daughter and sees that she gets everything she needs. He has always had my daughters health a #1 priority and looks into everything different type of device or tool I ask about, and lets me know if it is worth trying yet or not at all. He cares about his patients.
Maryland
Dr. Sakkubai Naidu
Director, Rett Syndrome Research Project
Department of Neurogenetics
Kennedy Krieger Institute, John’s Hopkins School of Medicine
707 North Broadway
Baltimore MD 21205
800-873-3377 ext. 2778 or 443-923-2778
Dr. Carmen Cuffari (Gasteroenterology)
Kennedy Krieger Institute, John Hopkins School of Medicine
200 North Wolfe Street
Baltimore MD 21287
410-955-2427
Dr. Marc DiFazio (Neurology)
9715 Medical Center Drive
Rockville MD 20850
301-928-3244
Dr. Paul Sponseller (Orthopaedist)
Kennedy Krieger Institute, John Hopkins School of Medicine
601 North Caroline Street
Baltimore MD 21287
443-923-2703
Massachusetts
Dr. Gerard Berry (Metabolism) Children’s Hospital Boston
300 Longwood Ave
Boston MA 2115
617-355-4695
website
Dr. Omar Khwaja (Neurologist)
Chidren’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617- 355-8994
website
Sharon Shaham (Augmentative and Alternative Communication)
Children’s Hospital Boston
9 Hope Avenue
Waltham MA 02453
781-216-2200
Dr Christine A Grazioso (Dentistry)
223 Routr 3A
Cohasset MA 02025
781-383-0003
Dr Timothy Buie (Gastroenterology)
Mass General Hospital for Children
1 Maguire Road
Lexington MA 02142
617-726-8705
Dr Barry Hirsch (Gastroenterology)
Baystate Medical Center
2 Medical Center Drive
Springfield MA 01199
413-733-1462
Dr Paul Salva (Pulmonology)
Baystate Medical Center
780 Chestnut Street
Springfield MA 01107
413-739-4144
Dr Jonathan Picker (Genetics)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-855-2029
Dr Ann Marie Bergin (Neurology)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-355-6815
Dr Omar Khwaja (Neurology)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-355-8994
Dr David Urion (Neurology)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-355-2711
Dr Nedda Hobbs (Pediatrics)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-355-6162
Dr John B Emans (Spine Surgeon)
Children’s Hospital Boston
300 Longwood Ave
Boston MA 02115
617-355-7132
Dr Herbert Gilmore (Neurology)
Baystate Medical Center
3300 Main Street
Springfield MA 01107
413-794-7040
Dr Elizabeth Thiele (Neurology)
Massachusetts General Hospital
Multiple Locations
617-726-6540
Dr. Gary Warrington (Dentistry)
955 Main Street
Winchester MA 01890
781-729-1900
*The whole practice is amazing!!! Love they hygenists & Staff and they also take Mass Health on top of most dental plans.
Dr. Benjamin Kruskal (Primary Care)
Harvard Vanguard Medical Associates
40 Holland Street
Somerville MA 02144
617-629-6300
New Hampshire
New Jersey
Dr James Wark ( Neurology)
Cooper Pediatrics
110 Marter Avenue Suite 402
Moorestown NJ 08057
856- 722-9001
Cooper Pediatrics
6400 Main Street
Voorhees NJ 08043
856- 751-9339
Cooper Pediatric Neurology
3 Cooper Plaza Suite 309
Camden NJ 08103
856- 342-2226
Cooper Pediatrics At Camden
3 Cooper Plaza
Camden NJ 08103
856- 342-2001
Dr Chester Minarcik
Child Neurology Services S NJ
110 Marter Avenue Suite 410
Moorestown NJ 08057
856- 722-0100
Dr Joseph Dryer (Orthopaedics)
194 Main St
Spine Care Orthopaedic
Millburn NJ 07041
Dr Roy Nuzzo
99 Beauvoir Avenue SUITE 750
Summit NJ 07901
908-522-5801
New York
Dr Aleksandra Djukic (Neurologist)
Albert Einstein College of Medicine
1300 College Park Avenue
Bronx, NY 10461
718-920-4378
website
Dr Paul Salva (Pulmonology)
Baystate Medical Center
780 Chestnut Street
Springfield MA 01107
413-739-4144
Dr Philip Kazlow (Gastroenterologist)
Childrens Hospital GI Nutrition
3959 Broadway
New York NY 10032
212- 305-5903
Dr Solomon Moshe ( Neurology)
Albert Einstein College of Medicine
Montefiore Moses Division
111 East 210th Street Suite H020
Bronx NY 10467
718- 920-8499
718-430-2447
Dr Alex Boro
Albert Einstein College of Medicine
Montefiore Moses Division
111 East 210th Street Suite H020
Bronx NY 10467
718-920-5370
Dr Daniel Miles
Comprehensive Epilepsy Center
223 East 34th Street
New York NY 10016
646- 558-0800
Dr David Roye (Orthopaedist)
Children’s Hospital of NY-ORTHO
3959 Broadway
New York NY 10032
212- 305-5475
Dr Maureen Cooney (Pediatrician)
Nyack Pediatrics
265 North Highland Avenue Suite 105
Nyack NY 10960
845- 358-5437
Dr Joseph Dryer (Spine Surgeon)
SpineCare Orthopedics, PC
530 1st Avenue Suite 8U
New York NY 10016
212- 263-7182
Pennsylvania
Neurodevelopmental Pediatrics of the Main Line
919 Conestoga Rd
Bryn Mawr PA 19010
610- 520-2130
Arthur Berman (Chiropractor)
5819 Forbes Avenue
Pittsburgh PA 15217
412- 521-3632
Jamie Berringer
Ross Chiropractic
1006 W View Park Dr
Pittsburgh PA 15229
412- 931-2273
Dr Phillip Pollice (ENT)
Metropolitan Ear Nose and Throat
501 Smith Drive Suite 1
Cranberry Twp PA 16066
724- 772-2711
Dr Robert Baldasanno (Gastroenterology)
CHOP
3401 Civic Center Boulevard
Philadelphia PA 19104
215- 590-1000
Dr Robert Clancy (Neurology)
CHOP
3400 Spruce Street
Philadelphia PA 19104
215- 662-3606
215-590-1719
Dr Samuel Goldfarb (Pulmonology)
CHOP
South 34th Street and Civic Center Boulevard
Philadelphia PA 19104
215- 590-3749
Dr Mary Louise Russell (Physiatrist)
UPMC Physical Medicine/Rehabilitation
3471 5th Avenue Suite 1103
Pittsburgh PA 15213
412- 692-4400
Dr Robert Cincala (Gastroenterology)
Associates In Gastroenterology
5500 Brooktree Road Suite 201
Wexford PA 15090
724- 933-1420
Dr Mark Sangimino (Orthopaedist)
Allegheny Orthopedic Assocs
20215 Route 19
Cranberry Twp PA 16066
724- 772-1960
Dr Amy Goldstein (Neurology)
Children’s Hospital East
4055 Monroeville Boulevard Suite 110
Monroeville PA 15146
412- 666-3800
Dr Martha Lusser (Neurology)
1251 South Cedar Crest Boulevard Suite 301A
Allentown PA 18103
610- 432-4114
Dr Leslie Soloshatz (Pediatrics)
Pediatric Alliance Arcadia
9000 Perry Highway Suite 120
Pittsburgh PA 15237
412- 366-7337
Dr Pamela Clair
Pediatric Alliance Arcadia
9000 Perry Highway Suite 120
Pittsburgh PA 15237
412- 366-7337
Dr William Coppula
Pediatric Alliance Arcadia
9000 Perry Highway Suite 120
Pittsburgh PA 15237
412- 366-7337
Dr Scott Faber
Children’s Institute
1405 Shady Avenue
Pittsburgh PA 15217
412- 420-2400
Rhode Island
Dr David Mandelbaum ( Neurology)
Hasbro Children’s Hospital
Children’s Neurodevelopment Center
593 Eddy Street
Providence RI 02903
401- 444-5685
Neurology Foundation
110 Lockwood Street Suite 342
Providence RI 02903
401- 444-4345
Dr John Gaitanis
Children’s Neurodevelopment Center
593 Eddy Street
Providence RI, 02903
401- 444-5685
Dr Craig Eberson (Orthopaedist)
Hasbro Children’s Hospital
593 Eddy Street
Providence RI 02903
401-457-1550
Dr Michael Schechter (Pulomonology)
Hasbro Children’s Hospital
593 Eddy Street
Providence RI 02903
401-793-8560
Dr Robert Griffith, Jr
Pediatric Associates
450 Veterans Memorial Parkway
East Providence RI 02914
401- 438-6888
Dr Jane Dennison
East Bay Pediatrics
234 Maple Avenue
Barrington RI 02806
401- 247-1644
Vermont
