Click here to submit a doctor you want to refer who has worked with a Rett patient.
Connecticut
Delaware
Maine
Dr. Michael Lambke
Skowhegan Family Medicine
64 Fairview Av.
Skowhegan, Maine 04976
(207) 474-6201
note from Cindy-Rae Vinson: This doctor got us to the right Neurologlist which got us a correct dianosis. Upon learning my daughter had Rett syndrome, Dr. Lambke offered to do some research and find us a doctor who knew more about Rett syndrome if we wanted but he was willing tolearn and take this journey with us! He’s been wonderful with my daughter and sees that she gets everything she needs. He has always had my daughters health a #1 priority and looks into everything different type of device or tool I ask about, and lets me know if it is worth trying yet or not at all. He cares about his patients.
Maryland
Massachusetts
Dr. Gerard Berry (Metabolism) Children’s Hospital Boston
300 Longwood Ave
Boston, MA 2115
617-355-4695
website
Dr. Omar Khwaja (Neurologist)
Chidren’s Hospital Boston
300 Longwood Ave
Boston, MA 2115
(617) 355-8994
website
Sharon Shaham (Augmentative and Alternative Communication)
Children’s Hospital Boston
9 Hope Avenue
Waltham, MA 2453
781-216-2200
New Hampshire
New Jersey
New York
Pennsylvania
Rhode Island
Vermont
