Click here to submit a doctor you want to refer who has worked with a Rett patient.
Arkansas
Dr. Melody Lynne Moody (Pediatrics)
1700 Harrison St
Batesville AR 72501
870- 262-2200
Dr. Stephen Bates-Neurologist
800 S Church St
Jonesboro, AR 72401
870-935-6012
Illinois
Pfeiffer Treatment Center
4575 Weaver Parkway
Warrenville IL 60555
866-504-6076
website
Dr. Peter Heydemann (Neurology)
Rush University Medical Center
1653 W Congress Parkway
Chicago IL 60612
312-942-4036
Indiana
Dr.Mark Gardner (Dentistry)
1239 State Road 229
Batesville IN 47006
812-934-6166
Mandy Collins (massage Therapist)
5612 N Finks Rd
Osgood IN 47037
812-852-2633
Dr. Andy Poltrac (Pediatrician)
Children’s Health Care
508 Mulberry Street
Batesville IN 47006
812-933-6000
Dr. Barbara Stewart (Pulmonology)
1225 E Cool Spring Ave
Michigan City IN 46360
219-879-6531
Dr. Elizabeth H Magno-Neurology
8315 Virginia St, #M, Merrillville, IN 46410
(219) 736-1500
Very caring-Loretta Rowland
Iowa
Kansas
Kentucky
Ephraim Mcdowell Regional Medical Center
217 S 3rd Street
Danville KY 40422
859-239-1000
Dr.Vinay Puri (Neurology)
601 South Floyd Street
Louisville KY 40202
502-589-8033
Dr. Deborah Massey-Eyre (Pediatrics)
Prospect Pediatrics
9217 US Hwy 42
Prospect KY 40059
502-228-1312
Dr. Lori Scales (Pediatrics)
Norton Medical Associates
300 High Point Court
Mt. Washington KY 40047
502-955-6129
Dr. Nemr Eid (Pulmonology)
234 East Gray Street
Louisville KY 40202
502-629-8830
Dr. Mary Fallat (Pediatric Surgery)
234 East Gray Street
Louisville KY 40202
502-538-7337
Michigan
Dr. Edward Dabrowski (PMR)
MIND Institute and Children’s Hospital of MI
3901 Beaubien
Detroit MI 48201
248-553-0010
313-993 -2757
Dr. Harry Chugani (Neurologist)
Children’s Hospital of MI
3901 Beaubien
Detroit MI 48201
313-745-5788
Dr. Gebarra (Gastroenterologist)
Beaumont Hospital Royal Oak
3601 W. Thirteen Mile Road
Royal Oak MI 48073
248-551-0487
Dr. Mahbubul Huq (Neurologist)
Children’s Hospital of MI
3901 Beaubien
Detroit MI 48201
313-745-5788
Dr. Elliott Weinhouse (Cardiology)
Beaumont Hospital Royal Oak
3601 W Thirteen Mile Road
Royal Oak MI 48073
248-551-0487
Dr. Madeline Chadehumbre (Neurologist)
Helen Devos Childrens Hospital
1300 Michigan St NW Suite 102
Grand Rapids MI
616-391-2185
Minnesota
Gillette Childrens Specialty Healthcare
200 University Ave
St Paul MN 55101
651-612-3176
800-719-4040
Gillette Lifetime Specialty Healthcare
(For the beyond Pediatrics girl)
435 Phalen Blvd
St Paul MN 55130
800-578-4266
Gillette Childrens Specialty Clinic-Brainerd Lakes
15860 Audubon Way
Baxter MN 56401
218-824-5001
800-578-4266
Gillette Childrens Specialty Clinic –Burnsville
305 East Nicollet Blvd
Burnsville MN 55377
866-881-7386
Gillette Childrens Specialty Clinic-Duluth
1420 London Rd
Lakewood Center
Duluth MN 55805
800-903-7111
Gillette Childrens Specialty Clinic –Maple Grove
6060 Clearwater Dr Suite 100
Minnetonka MN 55343
763-496-4000
Dr. Michael Frost (Neurology)
Gillette Children’s Hospital
Minnesota Epilepsy Group
225 Smith Avenue North Suite 201
Saint Paul MN 55102
651-220-5290
Dr. Stephen England (Orthopaedist)
Gillete Childrens Hospital
Pediatric Orthopaedic Associates PA
6060 Clearwater Drive Suite 100
Minnetonka MN 55343
651-291-2848
952- 936-0977
Dr.Steven Koop (Orthopaedist)
Gillette Childrens Specialty Healthcare
305 East Nicollet Boulevard Suite 200
Burnsville MN 55337
952- 223-3400
Missouri
Dr. Ahmed Abdelmoity (Neurology)
Childrens Mercy Hospital
2401 Gillham Road
Kansas City MO 64108
816-234-3090
Dr. Raymond Cattaneo (Pediatrics)
Priority Care Pediatrics
9411 N Oak Trfwy
Kansas City MO 64155
816-412-2900
website
Dr. John Montavani (Neurology)
St. John’s Mercy
St. Louis MO
314-251-5866
Dr. Michael Frost (Neurology)
Gillette Children’s Hospital
Minnesota Epilepsy Group
225 Smith Avenue North Suite 201
Saint Paul, MN, 55102
651-220-5290
Dr. Dennis Altman (Neurology)
Saint Louis Child Neurology Service
621 South New Ballas Road Suite 5009B
Saint Louis MO 63141
314- 251-5866
Dr. Garrett Burris
Child Neurology Associates Inc
226 South Woods Mill Road Suite 46W
Chesterfield MO 63017
314- 275-7070
Dr. Thomas Geller
St Marys Health Center
3348 American Avenue
Jefferson City MO 65109
573-634-8802
Dr. Edwin Trevathan (Psychiatry)
St Louis Children’s Hospital
1 Children’s Place
Saint Louis MO 63110
314- 454-4089
Dr. George S. Bassett
Mid County Orthopaedics and Sports Medicine @ St. John’s Mercy
621 South New Ballas Road Suite 63B
Saint Louis MO 63141
314- 983-4700
314-645-4600
Dr. Joseph Goldenberg (Pediatrics)
Saint Louis Pediatric Assocs
226 South Woods Mill Road Suite 32W
Chesterfield MO 63017
314- 576-1616
Dr. Blakeslee E. Noyes (Pulmonology)
Cardinal Glennon Hospital
1465 South Grand Boulevard
Saint Louis MO 63104
314- 268-6439
314-268-2700
Nebraska
North Dakota
Ohio
Dr. Kalavsky- Neorology
Boardman Medical Pavilion
8423 Market St. Suite 300
Boardman Ohio 44512
330-553-8270
330-553-8274-fax
I love Dr.Kalavsky he helped so much after going from diferent doctors never believing my daughter had CP or just developmental delay.She was 8 almost 9. He watched her and asked me to play and do what was normal to her and he just watched.It took about 10 mins when he asked id I had heard of Rett. I said no. He told me to look it up cause he had a stronge feeling it was this rare thing he called Rett syndrome so I went home Googled it. I read everything I could find .I cried tears non stop .I didnt know how to feel. I found the answer and I knew it soon as I was done reading. I called him back and test came back positive for rett syndrome after 8 yrs and he watched her for 10 minutes and just knew. So I say he a lifesaver to Kara-Lynn and I. He always calls me right away if I need anything specially with the seizures. He is very good-Marie Sullivan
Pediatric Gastroenterology
3333 Burnet Ave
Children’s Hospital Medical Center
Ml 2010
Cincinnati OH 45229
513-636-4415
Dr. Ton J. deGrauw (Neurology)
3333 Burnet Ave
Children’s Hospital Medical Center
Cincinnati OH 45229
513-636-4222
Dr. Patricia Manning (Pediatrician)
3333 Burnet Ave
Children’s Hospital Medical Center
Cincinnati OH 45229
513-636-5340
Dr. Jilda N. Vargas-Adams (Physiatrist)
Childrens Hospital Medical Ctr
3333 Burnet Avenue Suite 4009
Cincinnati OH 45229
513- 636-7480
Dr. Julie Miller (Physical Medicine)
2150 West Central Avenue
Toledo OH 43606
419- 291-2200
Dr. Khaled M. Zamel
555 South 18th Street
Columbus OH 43205
614- 722-4634
Dr. Aaron Buerk
Pediatric Orthopedic Surgeons
2121 Hughes Drive Suite 980
Toledo OH 43606
(419) 291-2345
Dr. Francis Hickey (Rheumatology)
Group Health Associates
7810 5 Mile Road
Cincinnati OH 45230
513-232-1253
Oklahoma
Dr. Eugene Litteken (Dentistry)
1103 Walnut Drive
Ardmore OK 73401
580-226-6290
Dr. Stephen Hutchins (Neurology)
Mercy Health Love County Rural
301 Wanda Street
Marietta OK 73448
580- 276-2400
South Dakota
Texas
Dr. Valerie Burton (Developemental Pediatrician)
12655 North Central Expressway Suite 300
Dallas TX 75243
972-788-1858
Dr. Daniel Glaze (Neurology)
Blue Bird Rett Clinic
6621 Fannin Street
Houston TX 77030
832-822-7388
dgglaze@texaschildrenshospital.org
Dr. Jeffery Nuel (Neurology)
Blue Bird Rett Clinic
6621 Fannin Street
Houston TX 77030
832-822-7388
jneul@bcm.edu
Dr. Kathleen Motil (Gastroenterology, Hepatology and Nutrition)
Blue Bird Rett Clinic
6621 Fannin Street
Houston TX 77030
832-822-3131
Dr. Angus Wilfong (Neurology)
Blue Bird Circle Clinic CHN
6621 Fannin Street
Houston TX 77030
832- 822-5046
Dr. Joshua Rotenberg
Texas Medical and Sleep Specialists PLLC
909 Frostwood Drive Suite 234
Houston TX 77024
713- 464-4107
Dr. Tom Carter (Family Medicine)
1001 Us Highway 83 North
Childress TX 79201
940- 937-3636
Dr. Danny H Danziger (Pediatrics)
Piney Point Pediatric Associates
2450 Fondren Road Suite 310
Houston TX 77063
713- 781-7907
West Virginia
Wisconsin
Dr. Tona Iyama (Pediatrician)
Waisman Center University of Wisconsin-Madison
1500 Highland Ave.
Madison WI 53705
608- 263-5776
