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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

SmartWatch

SmartWatch continuously monitors the wearer and detects repetitive shaking motion similar to those caused by seizures.

The instant SmartWatch detects abnormal movement, it reliably issues text and phone call alerts to designated contacts, such as caregivers and family members.

SmartWatch records the time, location, duration and severity of all alerted events. Data is available for secure access […]

EazyHold

EazyHold™ is a simple but innovative grip assist strap that easily attaches to tools, toys, utensils and more! It enables children and adults with limited or no grip strength to accomplish all the necessary acts of daily living, and helps to achieve a more independent lifestyle. The EZs are made of soft, flexible food grade […]

Geleeo

Geleeo, an award-winning product, is the only self-cooling stroller liner ever invented. With proprietary hydrogel inside, Geleeo manages to stay a few degrees cooler than its ambient environment without prior refrigeration.

All Position Umbrella with Universal Clamp

4-way swiveling umbrella
Universal clamp connects to most surfaces
Folds down together for compact transportation in included carry bag
Swivels on two push button hinges for easy adjustment
UPF 50+ lining for maximum sun protection

Bed Rail Alternative

Submitted by:  Rhea Bax

Tip- instead of having a bed rail for Anna (7 years old) we put a pool noodle on each side under the mattress pad. I know that they sell large ones now for older kids. Works awesome, plus is a cost saver.  You can also use a body pillow!

20 Cool Science Projects!

This is a great site with some fun DIY science projects!

DIY Headbands

Check out this great tutorial on how to make your own headbands from old t-shirts!  Genius!

Emergency Evacuation Plan

Does your childs IEP include an Emergency Evacuation Plan?  If not then take a look at this site that guides you through it.

The Honest Company

Submitted By:  Sara York

The Honest Company passionately believes in creating effective and unquestionably safe, eco-friendly, beautiful, convenient, and affordable products for babies and homes.

Sara’s Comments to the Honest Company:

“I just felt compelled to write a thank you to The Honest Company for everything you have done for us. July 1st this year my sweet little daughter was […]

DIY Infinity Scarves

LOTS of Rett Girls are styling with infinity scarves as opposed to bibs – check out this quick tutorial on how to make your own from a t-shirt!

My ID Squares

SquIDs (Square IDs) are a new kind of medical ID that connects to an online medical profile and alerts emergency contacts.
Medical professionals can access your medical information by either:

Scanning the QR bar code with any mobile device
Going to the website address written on the back of the SquID

Then the following happens:

Emergency contacts are optionally alerted via text […]

DIY Cool Off Necklace

Does your Rett Girl have trouble cooling off in the hot weather?  Try this awesome DIY cool off necklace!

Special Globe

SpecialGlobe is an online community, and content rich resource, designed to empower special needs families to explore the world. We hope to create long lasting memories for your family by providing you with the knowledge and tools you need to build a customized experience for your specific family travel needs. We will also educate the […]

DIY Trunk Organizer

Easy to make DIY trunk organizer to make room for a wheelchair.

Snot Sucker

Nosefrida The Snotsucker, the doctor-developed and doctor-recommended nasal aspirator is the new standard in keeping babies naturally snot free. Ingeniously simple Swedish design features a tube that is placed against the nostril (not inside). Parents use their own suction to draw mucus out of their child’s nose. Disposable filters prevent any bacterial transfer. Nosefrida is […]

Blue Light Filters

Submitted By Ingrid Harding:

“Sarah’s teacher just had these installed in the classroom and they said it has made a HUGE difference for Sarah and the other children too!  It has made everyone (including the teachers!) calmer and more focused.”

Himalayan Salt

We started adding Himalayan Salt to my daughters baths and her skin has never looked so good.  She had small patches of eczema that are now totally cleared up and it was very easy to just sprinkle a few tsps of salt into her bath.  We also started using Himalayan salt instead of table salt […]

Butterfly Lights

Submitted By:  Jen Dalton

These butterfly lights are perfect for decorating your Rett Girl’s room!

Full Coverage DIY bib

This is such a cute AND practical bib!  It’s completely full coverage so you can save your Rett Girls clothes!  Click on the link for the full DIY tutorial!

The Shoe ID

Lightweight and durable, the popular Shoe ID can be laser engraved with your emergency contact information. You can simply strap this sexy little fella on your running, walking or cycling shoe. Then, enjoy the peace of mind that comes with having ID every time you step out the door. It’s made of durable stainless steel and attaches […]