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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Rett Syndrome Growth Chart for Head Circumference

Slowing of the normal rate of head growth, failure to thrive and growth abnormalities are common symptoms of Rett Syndrome therefore a typical growth chart is not optimal for our Rett girls.  This is a Rett Syndrome growth chart that takes into consideration these factors as well as when these symptoms usually become apparent.  This [...]

Rett Syndrome Growth Chart for Height and Weight

Slowing of the normal rate of head growth, failure to thrive and growth abnormalities are common symptoms of Rett Syndrome therefore a typical growth chart is not optimal for our Rett girls.  This is a Rett Syndrome growth chart that takes into consideration these factors as well as when these symptoms usually become apparent.  This [...]

GumDrop Case for ipad

Submitted By:  Bridget MacDonald

This case is amazing.  Has protected our ipad from 3 small children.  A few drops, lots of drool and lots of handling.  This case is great, it does make the ipad a bit heavier but that’s because it’s durable.  The case is non-slip and there is a screen protector.

Sleepy Cow Creations

Yay!  Another person making Arm Braces or Elbow Immobilizers for our Rett Girly’s!  She also makes super cute hair bows and bibs and has very reasonable prices.

Egg Spinner for coloring Easter eggs

This is an egg spinner for coloring Easter Eggs, you place the egg and the dye in the spinner and put the lid on, on top of the lid is a big button, when it’s pressed down the spinner spins and colors the egg.  This is a great hand over hand way of getting your [...]

Prescription Refill Apps

Walgreens and CVS both have apps that allow you to scan the barcode on your prescription when you’re ready for a refill.  Faster than sitting on the phone and going through the automated refill.

Therapy Shoppe

One of my favorite aspects of this site is their 175 fun products for $5 or less!

On our site you will find a wonderful assortment of
therapy merchandise: specialty toys and games,
hard-to-find favorites, innovative new products you
haven’t even heard of yet, and lots of other great goodies and gadgets!… Everything you’ve been looking for and much [...]

Allergy Eats

AllergyEats is a comprehensive, user-friendly guide to allergy-friendly restaurants across the United States. It is a peer-reviewed directory of restaurants – rated by people with food allergies, for people with food allergies.

Our database has over 600,000 restaurant listings across the U.S. – from large chains to small mom and pops, from gourmet to greasy spoons. [...]

Weighted and Personalized T-shirts

The Wiggly Worm weighted T-Shirt was designed to provide sensory input that will deliver a calming effect as well as increase the child’s body awareness and position in space. The T-Shirt has pockets that are located under the shirt. The pockets hold the weights that are designed to allow even distribution through the child’s upper body. [...]

Medications to Avoid with Long QT Syndrome

This website offers a list of medications to avoid for patients with Long QT Syndrome.

Handling the Young Child with Cerebral Palsy at Home

Fundamental to the successful treatment of children with cerebral palsy is the cooperation of parents in home handling. The long-awaited new edition of this classic and popular text has been expanded and updated to include a wealth of new information for therapists, nurses, parents and carers.

From the Publisher:

In order to help the young cerebral palsied [...]

Holiday Tips

The biggest thing to overcome during the holidays is just pure stress.  Everyone out there feels it, but when you have a disabled child thrown into the mix, stress can rise to a whole new level. Stress of disappointment over your daughter’s condition, stress of your daughter’s anxiety as the routine and activity level changes, [...]

Adaptive switch

Make an adaptive toy for a dollar… Here’s how
If your daughter is like mine, then she loves those walking, talking, singing, dancing, tickling, robotic plush toys. We probably have ten of them scattered around our house. And yes, they drive us crazy, but what annoys us more is that our daughter (Abby) cannot [...]

Do it yourself bath chair

Submitted by: Patty Mevis

Bath chair

Home

For our 4 year old, we’re using a kid sized Adirondack lawn chair from Fleet Farm ($8.00). It reclines, sits low to the bottom of the tub and we put a non skid padded bath mat on top of it so she doesn’t slide out.

Paraplis Umbrella Holder for Wheelchair

The Paraplis Umbrella Holder for Wheelchair provides users with the ability to have an umbrella on them at all times, without the hassle of carrying it around. By simply attaching the Paraplis to any wheelchair, rollator, walker or even stroller, users are able to access their umbrella whenever needed.

Equipped with a two positioning buttons, the [...]

Heated Throw.

Does you daughter have extreme shivers when she gets out of the bath? Try a heated throw on her bed turned on low just before she gets in the tub!
Wrap her in it after drying while you gather her night time routing together to keep the chills away.
Also a good thing to have handy in [...]

Snuggie

Everyone loves a Snuggie. We have been using ours for extra coverage on the wheelchair. Hands though sleeves and the rest can be tucked completely around her over her jacket. A great keep warm gift. Sleeves are just long enough to be able to tuck over those hands that pull mittens off with lightning speed.
Variety [...]

Fun finger food!

submitted by: Ingrid Harding

Snapea Crisps! Yum! our daughter loves these! Easy to gasp and chew (so great for OT therapy)– and they really wake up your mouth… we share them with lots of giggles — get them in bulk online or look in the salad section of your grocery store.

Huge Self Inking Stamp

Submitted by: Kelly Shubert

We got one with  her name that she uses at school to put her name on things and then we got one that says “Love, Emma” so she can sign her cards.  I got the biggest one I could find so all she had to do was put her hand on it.  [...]

Heat and Bond Vinyl For Bibs

Submitted by: Carrie Akins

Many of our girls soak through bids instantly, with this iron on vinyl you can make any bib or bandana more durable and soak proof!