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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Quickie Zippie TS Wheelchair

Submitted By:  Mimi Garcia-Burns

Love that I can recline her, but keep in mind that that adds to the size and weight of the chair. Also, I have an adjustable extended handle. So dad@ 6′3″ can push her easily but so can Calan. Glides easily as I often push and Manuver one handed as I’m
Opening a [...]

Height Right Kids Chair By Keekaroo

Submitted by:  Julie Shaffer

This is wonderful! She looks so much more comfortable and can’t really rock much!

Keekaroo is made by the same company as Special Tomato so if you are looking at the Special Tomato Height Right Chair then you certainly want to check out the Keekaroo – an identical product for less money.

Sleepy Cow Creations

Yay!  Another person making Arm Braces or Elbow Immobilizers for our Rett Girly’s!  She also makes super cute hair bows and bibs and has very reasonable prices.

Car Seat Foot Rest

No more painful dangling legs! You know how uncomfortable it feels when your feet don’t touch the ground? That’s how kids feel everyday in their car seats! Unsupported feet results in poor leg circulation (some kids even get painful “pins and needles”). The solution: slide our universal footrest under your child’s car seat or booster! [...]

Innowalk

Submitted By:  mayia Britt

Our 5 year old Rett Girl has been using the Innowalk for 1½ month.
She is in the innowalk 1 – 1½ hours daily.
We mesure muscle improvement in legs – relief of constipation – and her feet are warm after use – not like other standers where her feet gets cold really fast.
We [...]

Ikea Chair

Submitted by Bridget MacDonald

This is the Poang Childrens Armchair my daughter LOVES it!  It’s super comfy with the padding, is tilted slightly so if she leans forward she won’t fall face first out of it, it has arms so she can’t fall out of it on either side and it has a slight give to [...]

Britax Snug Seat Car Seat

Submitted By:  Elaine Moffatt

We have used this car seat for the last 5 years and love it. Sierra is 8 now and I think we will get several more years from it.

Britax Traveller Plus EL

We have this carseat and we love it, We call it her lazy boy, It is huge and very sift due to cushioning and suede like materia. The headrest is and extra plus. We have not had one incident of dead flipping since we purchased it

Terri Vejrosta

X Panda R82 High Low Dynamic Seating System

 x:panda is a multi-adjustable dynamic seat, delivered in 4 different sizes – each seat with up to 10 cm in seat width and depth adjustment coupled with sliding back growth.
The back is dynamic, making it possible for the child to extend and push back against relatively light resistance and then regain the desired sitting position. [...]

Beds by George

Custom made Safety Medical Beds…

Beds by George is all about beautiful safety beds. Start by determining what base product you need for safety then adding the aesthetic options that best suit your tastes and decor. Both the Full Side and the Hi-Side offer a range of modifications and accessories because we know firsthand that every [...]

WeeRide LTD Kangaroo Child Bike Seat

The ultimate in child and comfort and safety, the WeeRide LTD Kangaroo child bike seat offers all the features of WeeRide’s popular Kangaroo carrier–including a unique carrying position and adjustable foot cups–but ups the ante by adding ultra-thick padding on the seat and back and a padded shoulder harness. As a result, your child will [...]

Bamboo Brace

Submitted by: Sue Workman PT, MA

My husband and I are both pediatric physical therapists.  Although we developed “The Bamboo Brace” originally for children with cerebral palsy and developmental delays it is also being used within the Rett population and we are getting great feedback. Would love to hear if it helps your child. They fit [...]

Special Tomato™ Soft-Touch™ Sitter

The Special Tomato™ Soft-Touch™ Sitter Only is an adaptive seating system for children with special needs. It is recommended for children with mild to moderate physical involvement from the age of 1 through adulthood. The Soft-Touch™ Sitter promotes an upright, seated posture with unsurpassed comfort and upper body support
Submitted by: Bridget MacDonald
This chair is so [...]

SleepSafe Beds

Many families struggle with safety at night for their girls as they sleep. A SleepSafe bed is the answer for you! These beds are amazing – they are just as beautiful as they are functional.  There are many options for you to choose from: Model, Function, Size, Finish, Accessories. You customize your bed so that it [...]

Bear Hug Vest

Submitted by: Terri Vejrosta

Our daughter has a very wide gait and low body awareness and will not walk without assistance outside of her bedroom or living room and frequently pauses and tremors. She will not step up or down on her own or pass from one room to another where the floor pattern changes. Her [...]

Hip Helpers

Submitted by:  Terri Vejrosta

From the website:

Hip Helpers® Support Shorts are the answer to excessive hip abduction in babies and toddlers with low muscle tone. They have been found to improve rotational movement and limit “W” sitting in babies who are developing their movement skills.

Hip Helpers® Support Shorts were developed by a physical therapist, in response [...]

Elbow Splint Tip

Submitted by:  Diana Zeilinger

Our daughters Doctor advised me to share some of the Rett Solutions I have come up with and this looks to be a great outlet for just that.  Several years ago I came up with a great way of making an elbow brace.  Our daughter has her hands (fingers actually)in her mouth [...]

TheraTogs

Submitted by: Bridget MacDonald

We bought this for our daughter about a year ago (I think insurances are now starting to pick them up).  It’s a bit combersome to put on but is great for posture and positioning.  Ours is basically to keep her in correct alignment while she is learning to walk.  The suit can [...]

Adjustable Positioning Chair by TherAdapt

Submitted by: Kelly Butler

This has been a wonderful chair for us. It is the perfect chair to work on “sit to stand” with out daughter. Adjusting the height is easy to do so the chair can “grow” with your child.

KidWalk Gait Trainer/Stander

Submitted by: Erin Bleske

We love that it can be used as a walker but also be locked into place to use as a stander.  It turns easily and allows her to participate without us having to hang onto her the whole time.