Welcome! Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.
Disclaimer Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.
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Submitted by: Jen Dalton
If you don’t have one of these you should get one! They were amazing when Em was in the hospital with a fever and it was awesome way to help her stay cool in the heat!
More about the Chillow:
Use the Chillow® and you will never again long for a cool spot. Whether [...]
Have you ever been so busy that you wished you had another hand? Then this is perfect!
Baby Bottle holder
Sippy cup holder
Hands free feeding
Twin Feeding, Multiples
Enabling Device
Take a look at this GREAT chair!
At home, there’s no need for your child’s constant sitting in wheelchairs or scooters, being propped up with pillows on the sofa, or laid on the floor. While at therapy or school, the deep V design allows occupants to sit safely without restraint in the most dignified and supportive [...]
This is a fantastic stroller, it has good support, great all terrain wheels, a 5 point harness, great foot plate and it reclines! It will fit my 8 year old who is about 40 inches tall and 40 pounds although she is starting to grow out of it at this point, length wise.
Our cozy hanging HugglePod™ HangOut is the perfect spot for your little snugglebug to read, play, listen to music, or simply let the imagination roam.
It features three porthole-style windows, a Velcro® flap door, and a plump removable cushion that’s stuffed with polyfill made from recycled water bottles. A string of LED lights adds function and [...]
Created by parents like you who simply wanted their baby to rest easier by keeping them cool and comfortable when traveling. Our universal design fits most baby seats and installs easily! Made from state of the art, 3-ply poly-mesh material that promotes airflow between your child’s body and their seat. Comes in multiple colors.
My Rett Girl and I both LOVE this car seat! It’s super comfy for her and we bought the turning plate so I can turn her seat to face the door so transfers are much easier on me. We have a mini van and it works perfectly in there but she does sit up really [...]
This is a great website that has extensive information on how caregivers can lift without injuring themselves.
This is an easy to read guide to how and why the hips dislocate and how to prevent it.
Napping crumpled over in the car seat or stroller? This patented travel pillow prevents stiff necks and slumping. The cutout headrest provides stability, while the contoured bolsters keep little noggins upright. One side of the pillow is cooling cotton, the other cozy fleece, providing year-round comfort. Choose 0-12 months (with pacifier tether), 1-4 years, or [...]
CARES Child Aviation Restraint System is designed specifically for aviation use for children age 1 and older who weigh between 22 and 44 pounds. These youngsters are old enough to be in their own seats, but are too small for the seat belt alone to protect them and provide the safety they require during airplane [...]
Millions of family vehicles are equipped with unsafe lap-only rear seat belts … yet retrofit shoulder restraints are unavailable or extremely expensive.
With E-Z-ON’s UNIVERSAL HARNESS, your back seat passengers will enjoy the same level of protection as airline pilots and race car drivers.
FMVSS Tested
Costs hundreds of dollars less than dealer retrofits
Easy to install and use
Made in the [...]
The Therapeutic Ambulatory Orthotic System (TAOS) is designed to function as an essential aid to your child with neuromotor impairments including CP to help encourage upright hands free standing or ambulation. The TAOS is the culmination of over 3 years of design and clinical work by a team of therapists, orthotists and engineers aimed at [...]
We are delighted to announce the launch of the TravelChair – a unique chair that provides firm, postural support enabling disabled children to fly on commercial aircraft.
Submitted By: Maggie Wurm
Yogibo-better than a bean bag chair, great sensory friendly and feels like a big hug. Cover is removable to be able to wash. We have the Yogibo Max and it’s awesome. Better support than the bean bag, MOLDS TO THE INDIVIDUALS BODY WHEN SITTING OR LAYING DOWN.
From Parenting Special Needs Magazine:
He’s a bit different, but that’s why kids love him! Heavy HerbertTM Weighted Animal Lap Pad is a soft and weighted companion that children adore. Our 5 pound Herbert can be hugged or use Herbert as a lap pad to improve concentration during circle time and work time. Herbert is a [...]
Many of us have seen our daughters use these in therapy, and many of us have bought them from through therapy magazines but did you know that they sell them at Walmart??? And they’re so much cheaper!
Submitted By: Bridget MacDonald
We have this disk for our daughter, we have her sit on the smooth side, it’s inflatable so she has to sit straight or else she will fall to one side (we pile pillows on all sides of her). We can see her core working as she sits there and try’s to [...]
Add one of these comfy, kid-sized chairs from Pottery Barn to any room and create a special spot that’s just for your Rett Girl and the great part is that the cover zips off for easy washing. The chair has a handle and is light enough to move from room to room! Bonus: it can [...]
Crelling Harnesses is a friendly family based company offering a full range
of seatbelts and harnesses for children and adults with special needs.
Our belts and harnesses are designed to offer postural support or in the case of
learning difficulties and challenging behaviour a certain degree of restraint.
The Information contained on this web site is [...]
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