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Welcome!

Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list!

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Disclaimer

Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

M is for Me Book

This is a true story about the Rett Girl in your life! It’s a

personalized ABC book filled with illustrations of positive personality traits that inspire.

Reading and Writing the 4 Block Way

This is a GREAT resource for teaching our Rett Girls how to Read and Write.  Written by: David Koppenhaver and Karen Erickson

 

Meet the learning needs and preferences of all students using Children with Disabilities: Reading and Writing the Four-Blocks(R) Way for students in grades 1–3. This 144-page book provides a glimpse into an inclusion […]

Personalized Books

OK, who’s Rett Girl ISN’T into Frozen?  These personalized books are awesome and no worries if frozen is not  her thing, there are many different titles to choose from!

Imagine the delight of kids as they flick through the pages of a colorful book and see their name woven into the storyline! These personalized […]

DC Super Hero’s: My First Book of Girl Power

I think the title explains it all for this book and why it’s perfect for our Rett Girls!

Just Because Book

Submitted By:  Candice Samples-Morris

This book is sold in a cardboard version which allows Evie to help turn the pages. It is also about a little girl that is pretty much just like Evie and even has a cool chair.I swear this author wrote about Rett!

Story Bots

Great website that lets you customize a book with your childs face and name!  The first book is for free and then there is a $4.99 monthly fee to access 41 other books! TOO FUN!!  They also have an app!

Audible.com

Audible, Inc., an Amazon.com, Inc. subsidiary, is the leading provider of premium digital spoken audio information and entertainment on the internet, offering customers a new way to enhance and enrich their lives every day. Audible content, which includes more than 100,000 audio programs from more than 1,800 content providers that include leading audiobook publishers, […]

I Like Book

Once a week, or even every day, you can spend quality time with your little love by sharing something you adore about them and putting it in the book. It’s a clever way to ignite positive communication and boost self-confidence. The i like book for kids captures the wonderful memories in your handwriting and […]

Turtle Books

Submitted By:  Maggie Wurm

TURTLE BOOKS fill the missing gap in children’s literature. Now you have easy-to-read books that honestly talk about what it’s like to be a child with a disability. Warm, colorful illustrations and simple, beautiful stories offer insights in dealing with children who have physical and mental disabilities.

Complete Tubefeeding

Complete Tubefeeding is the definitive guide for anyone living with or preparing to receive a feeding tube, and those who care for them. The author, happy owner of a feeding tube himself, combines the best and latest medical research with insights from his and others’ real-world tube feeding experiences. This helpful handbook provides comprehensive […]

They Call Me Horse

Submitted By:  Jennifer Lopez

They Call Me Horse was written by my mother in law to help kids see that even though we may look and act different we all have the same feelings and needs. Inspired by my Sammi and dedicated to all the girls with Rett Syndrome who struggle everyday.

Barefoot Books

Submitted By:  Maggie Wurm

Here is another great site for all our bookworms out there like my wigglewurm Madasyn. Story books that have pictures, Barefoot books are amazing. They focus on themes that encourage independence of spirit, enthusiasm for learning and respect for world’s diversity. Their books range from birth to age 12 and […]

Accessible Books

Submitted By:  Maggie Wurm

Schools have memberships, our girls can access school text books from their own homes. And certain kids qualify, our Rett angels do because of not able to hold a book!

50 Story Book Classics on DVD

50 award-winning and classic children s stories are faithfully adapted and brought to life in this 7-DVD collection. From the wild imagination of Harold and his purple crayon to the beloved musical story There Was an Old Lady Who Swallowed a Fly to the new family favorite Knuffle Bunny, these seven DVDs feature nearly […]

All About IEP’s

Whether you are the parent of a child with special education needs, a seasoned educator, or a professional advocate, you have questions about Individualized Education Programs, (IEPs). In this comprehensive, easy to read book, you will find clear, concise answers to frequently asked questions about IEPs. Learn what the law says about IEP Teams […]

From Emotion to Advocacy

Wrightslaw: From Emotions to Advocacy, second edition will teach you how to plan, prepare, organize and get quality special education services. In this comprehensive, easy-to-read book, you will learn your childs disability and educational needs, how to create a simple method for organizing your childs file and devising a master plan for your childs […]

Including Students with Severe Disabilities in Schools

This is a great book although it is a bit dated (from 1994) but most of the information is still very much relivent.  What I like most is the real life scenarios that are spotted through out the entire book.  A good read and some great ideas.

Love Is Two People Talking

My husband recently had his first novel published, “Love is Two People Talking” which has a girl with Rett as one of the main characters.

Sam Geller is an independent, 80-year-old pawnbroker enjoying his life and freedom until he is diagnosed with a debilitating disease that forces him to move in with his son, […]

eztales.com

Submitted by:  Kelly Butler

eztales.com is an interactive library of books that encourages early literacy.

This is a pretty good – site- it “turns the pages” with out having to touch anything and the words turn red as they are being spoken

Looney Tunes Phonics Website

My daughter is using this website with her eye gaze computer.  She is not able to get her computer to “click” on what she needs to but with her eyes she can “dwell” over the answers and I click for her.  She loves this curriculum because there are lots of breaks in between the […]