Welcome! Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, and even our own little Rett-"bay" where you can find/sell/donate used items.
Disclaimer Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.
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Submitted by: Julie Shaffer
This is wonderful! She looks so much more comfortable and can’t really rock much!
Keekaroo is made by the same company as Special Tomato so if you are looking at the Special Tomato Height Right Chair then you certainly want to check out the Keekaroo – an identical product for less money.
AllergyEats is a comprehensive, user-friendly guide to allergy-friendly restaurants across the United States. It is a peer-reviewed directory of restaurants – rated by people with food allergies, for people with food allergies.
Our database has over 600,000 restaurant listings across the U.S. – from large chains to small mom and pops, from gourmet to greasy spoons. [...]
This is a great site that offers several feeding products like bag packs, and tube covers. My favorite is the button cuddlers, they are protective pads for g-tubes but also have a cover over the top to protect against leaking sites. Fantastic!
Adorable and comfy pads that fit around g-tube’s.
Pumpkin Packs provides fun, stylish backpacks for children who require feeding tubes or intravenous feeding
This is an awesome and very affordable way to adapt clothing to g-tubes. Check out their site for lots of different tummy tunnel patches and a nice picture tutorial of how to use them.
At last! A deliciously creamy, non dairy wellness drink for kids and grown ups alike. Inspired by the tummy-settling principles of the B.R.A.T. diet, Organic B.R.A.T.™ feel better drinks are formulated with ingredients that settle an upset stomach and help to calm vomiting & diarrhea while also naturally restoring electrolytes and nutrients.
Perfect for [...]
Submitted by: Kelly Butler
My daughter Brooklyn is SO PICKY about the cup she drinks from, more specifically the straw she drinks from. We recently discovered these great cups! I hope maybe they might help other picky drinkers too!
The Magic Bullet Hi-Speed Blender/Mixer System- 22 Piece Set This versatile machine will do virtually any job in the kitchen in 10 seconds or less, yet it takes up no more space on your counter than a coffee mug. It’s so easy you’ll use it every single day of the week!! The Magic Bullet replaces [...]
Submitted by: Terri Vejrosta
Help your child learn drinking skills with this flexible 1 oz. cup. Children with limited head extension, poor lip closure, and swallowing difficulty benefit from the cup’s flexibility. The “cut-out” portion allows the cup to tip closely to the face. This helps children deliver liquids safely and accurately to the mouth. Unlike [...]
This brush is recommended by Speech Pathologists as well as feeding clinics to wake up the mouth before feeding.The Nuk™ brush massager is used for oral massage, oral stimulation and exploration. It stimulates lateral molar ridges, reduces oral hypersensitivity, and helps develop a tongue groove. The flexible, nubby texture offers valuable sensory input for the [...]
submitted by: Ingrid Harding
Snapea Crisps! Yum! our daughter loves these! Easy to gasp and chew (so great for OT therapy)– and they really wake up your mouth… we share them with lots of giggles — get them in bulk online or look in the salad section of your grocery store.
Submitted by: Brittany Withers
My daughter is unable to eat most solid foods, and gets most of her meals through a bottle, so we puree foods, load them up with calories (butter, veg. oil etc…) and put them in this….sometimes the foods are too thick, so either water them down or cut a bigger hole in [...]
Submitted by: Ingrid Harding
This little grinder is so easy! And it is super portable for trips and restaurants — grinds up most anything. It will strengthen your upper arms too! We have had this for almost 12 years and it is still doing great! Highly recommend to grind up food for our girls [...]
Submitted by: Kelly Butler
My daughter is learning to drink from a straw. If your daughter is like mine and has trouble sucking the liquid up into the straw than is this the perfect solution for you! The valve keeps the straw full of fluid and reduces coughing and choking, plus the child does not have to suck [...]
Submitted by: Kristy Brooks
We use this to thicken Juliana’s liquids we always use this. It’s easy, and you can put it in anything. It also has no yucky taste!
Submitted by: Doris Lee
They have a rigid straw, (when Edda was learning to drink, she would chew the straw and destroy the sort of disposable straw). So we found this bottle and we could squeeze the juice up through the straw and that’s how we taught Edda to drink from a straw.
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