Slowing of the normal rate of head growth, failure to thrive and growth abnormalities are common symptoms of Rett Syndrome therefore a typical growth chart is not optimal for our Rett girls. This is a Rett Syndrome growth chart that takes into consideration these factors as well as when these symptoms usually become apparent. This [...]
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Slowing of the normal rate of head growth, failure to thrive and growth abnormalities are common symptoms of Rett Syndrome therefore a typical growth chart is not optimal for our Rett girls. This is a Rett Syndrome growth chart that takes into consideration these factors as well as when these symptoms usually become apparent. This [...] We left the Natural History Study with instructions to fatten up our daughter before she hits puberty so that she can make it into the growth spurt without falling off the curve. (Though I think the doctor should come take care of her at her current 50 lbs then re-evaluate!) Anyway, my daughter [...] Submitted by: Bridget MacDonald I sprinkle my daughters (and all my kids) food with ground flax seeds. It “hides” well and adds extra fiber, omega 3′s and calories to food. If you try this start out slow, especially if your daughter isn’t used to fiber, it could cause stomach discomfort. Great way to add calories to any dish! It has about 14g of fat per tablespoon! Be sure to get the Extra Virgin for the easiest on the tummy. *also makes a great skin lotion after a bath!
Submitted by: Kelly Butler This juice is a great sounce of extra calories for our girls. Each serving provides 300 Calories and an Excellent Source of Protein. Enlive! is an ideal choice for low-residue, low-sodium, and low-cholesterol diets. Available in Apple and Peach flavors. (Will not work for those on the CFGF diet.) I have found [...] |
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