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Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list!

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Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Elbow Splint Tip

Submitted by:  Diana Zeilinger

Our daughters Doctor advised me to share some of the Rett Solutions I have come up with and this looks to be a great outlet for just that.  Several years ago I came up with a great way of making an elbow brace.  Our daughter has her hands (fingers actually)in her mouth during all waking hours (as with most of our girls).  We found that if we brace her left arm (which happens to be the controlling arm for this behavior) she then has more control of her hands and is more able to self feed or reach out and hit a switch etc – we therefore use the brace at school a lot.

I buy a black Neoprene type elbow brace that you can find at Wal-Mart then sew a soft piece of fabric on the inside – leaving one end open.  I then cut several pieces of those plastic bendable cutting boards the same size as the brace and slide them in – then sew up the opening.  You can then wrap the brace around her arm but the pastic makes it stiff enough that she can’t bend it.  I make the brace long enough to go from underarm to wrist because if it’s shorter than that, it always seems to shift up or down.  When our daugher was 4 or 5 this meant only needing one of those store bought braces.  But once her arm got longer – I would buy two of them and sew them together – overlaping them enough to create the right length.  Our daughter is now 12 and I am using the full length of two braces.  This doesn’t require a lot of sewing knowledge but it is best done on a machine rather than by hand.  It makes a very nice looking brace and works great.

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