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Take a look around! We have a ton to share with you! (and please share with us!). Everything here is hopefully something that will help your little girl fight a stronger fight against Rett Syndrome. Check out our product reviews, tips from other families, resource guides and doctor/therapist list!

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Rett Girl! is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Girl Power 2 Cure, Inc. is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.

Arm Brace

Submitted by: Doris Lee

I thought they were OK, not terrific. My daughter mouths and these come off easily.

4 comments to Arm Brace

  • These work great with our daughter, although she is NOT a hand mouther. We use them to keep her left arm stable/still so that she has better control of her right arm – for using switches at home and at school.

    Jan at armbraces.com is amazing to work with (and is a Rett Grandma!)

  • Abby uses her armbraces at school daily. They keep her on task and keep her hands out of her mouth. Abby is a handmouther and you have to pry her arms apart without them. She is better able to manipulate her switches and focus.
    Sometimes if your girl gets frustrated with them on it helps to just brace her non dominant arm.

  • April Brown

    We’ve been using these for years. Ilah has been handmouthing since she was a toddler (about 6 yrs.) and, out of all the options out there, this is the very best. Other bracing is either too heavy or does not keep her hands out of her mouth. Sure, she has learned to sling her arm repeatedly so they slide off but I still think they serve their purpose. They are well made and might even stay on better if I used the little liner they come with. I recommend them 100%.

  • I am a pediatric physical therapist and although I haven’t seen or used this particular arm brace we have a brace called “The Bamboo Brace” we developed originally for children with cerebral palsy and developmental delays that is also being used within the Rett population and we are getting great feedback. Perhaps worth trying. They fit nicely under clothing, have a non-slip surface and have adjustable stays that can allow for the brace to be either more rigid or more flexible depending on the child’s needs. CPSIA complaint and FDA approved. Hope this helps! You can always contact us with any questions. http://www.thebamboobrace.com or http://www.professionaltherapies.com

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